Hear from people taking SPEVIGO
Individuals featured here have been compensated for the time spent to share their stories.
Becoming your own best advocate
Kathryn, whose choice is SPEVIGO
I’m fortunate to have an amazing doctor who treats me as a partner. Our relationship is a key reason my GPP is now well managed, but it’s just one piece of the puzzle. The other was becoming my own expert about GPP and my treatment options.
Doing my own research helped me have more informed conversations with my doctor and the confidence to ask for what I needed.
Through these conversations, my doctor and I worked together to find a treatment plan that works for me.
- Stay updated on research — I read as much as I could online about GPP-related research and treatments. This helped me better understand the science of GPP, how treatment plans differ, and potential options in development on the horizon
- Utilize advocacy groups as a resource — I also found it helpful to become familiar with psoriasis-related patient advocacy groups and all the information they share online. These groups do a great job making complex medical information easier to understand. Staying on top of new resources, events, and other educational initiatives has given me a strong understanding of GPP
- Learn from the community — In addition to “doing my homework” and learning about GPP research, I also felt strongly that hearing real-life experiences from others was an important input
When my doctor explained how SPEVIGO worked and that it was the only targeted treatment for GPP, I felt hopeful that it could be a good option for me.
It also helped to learn about the experiences that GPP community members had with SPEVIGO. When I read that there were 2 forms of SPEVIGO — an intravenous (IV) one to treat an active flare and a subcutaneous (SC) one to treat GPP between flares, I was eager to talk more with my doctor about the medicine. My doctor walked me through the possible side effects and how SPEVIGO might help me. Since starting monthly treatment with SPEVIGO SC, I haven’t had any flares.
By sharing my story, I want to inspire others who may be struggling to find a treatment plan, be afraid to talk with their doctor, or not know where to start with making informed decisions for their life. My advice: don’t doubt yourself! Learn all that you can, talk with your doctor to learn more about targeted treatment for GPP, and discuss what your treatment path forward may be. Always remember you’re not alone, the GPP community is here to support each other and learn together!
Individual results may vary based on many factors, including elements like the severity of your GPP, your treatment plan, and any other conditions you may have.
GPP=generalized pustular psoriasis.